Tag Archive | losing your hair

How to Deal with Chemotherapy

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Go ahead, introduce me to this ‘cancer’ fella…

Together, with our combined forces of hope, perseverance, positive thinking

and butt-kicking skills…

We can beat this thing

INTO SUBMISSION!

I mean…remission.

I endured ACT chemo back in 2002 ~ 8 rounds given once every 3 weeks.  So for me, I was feeling yucky for the first 2 weeks but the 3rd week was my ‘party week” as much as you can ‘party’ while dealing with breast cancer.  Party for me meant that I got out of the house, perhaps lunch with a friend or if I had the energy, a bit of window shopping.  My friends and family made sure that the last week before my next round of chemo was for fun so that when I was knocked down the following week, I had some fun memories in my back pocket and then I also had something to look forward to 3 weeks ahead!

I met with a nurse who had endured chemo at my oncologist office and she gave me a few tips which I pass on whenever I hear of someone who will be having chemo.   There’s also a few things you should know about what this chemo does to you.  So hold my hand…and I’ll help if I can.  Please know that these are simply suggestions based on my experience.  As you know, I”m not a doctor so please check with your own physician and nurses.

PORT:  I had a port, which I loved because it meant that I only had one needle.  Of course, that needle still pinched when it went in, but because my veins weren’t very hardy, it was easier and safer for me to have my chemo directly inserted into my veins through my port.  Ports don’t hurt and you hardly know they are there in case you are thinking of getting one.  I do suggest that you wear a front buttoning shirt or zippered jacket so that the nurse can access the port easily and you can stay covered as chemo takes awhile and you will be there for a few hours.

NEVER EVER EAT YOUR FAVORITE MEAL THE NIGHT BEFORE CHEMO!  That was a rule I was given before I had my first session and it’s stayed with me.  Do you know why?  Because if you throw it up after chemo, it will never be your favorite meal again!  It was a cardinal rule for me and even though I only threw up the first night of my first chemo session, I never chanced it.

The night before chemo and the first few days after your chemotherapy, eat bland foods and nothing greasy.  You do not want to aggravate your stomach any more than it will already be with the chemo drugs, so take it easy.  I remember I came home from my first chemo session and I wanted mashed potatoes.  Listen to your body and it will steer you in the right direction.  Bland, non-greasy foods are always good for you during chemo as you may feel nauseous afterwards and greasy foods will aggravate your stomach.  Also, make sure you take your anti-nausea pills on time and as prescribed even if you are not nauseous.  For once you get that nausea feeling, it’s hard to shake it.  An ounce of prevention is worth a pound of cure!

What to Wear:  For chemo sessions, I suggest wearing something comfy as you will be there for a few hours.  There’s nothing like being in something stretchy and warm so that if you are given a recliner, you can relax while you have your chemo.  Also, you will be weighed every time, so it’s easier if are wearing the same type of clothing so you can monitor your weight better.  Not that it really matters, that was my own hangup as I did gain weight on chemo due to steroids etc.

What to Bring:  Because every oncology office is different, you may be able to have your loved one with you while you are there, but some offices, like the one I was at, didn’t allow family in the chemo room.  So, I used to bring a book to read which honestly, I don’t think I ever really read more than once.  You see, sometimes you start chatting with the patients around you as you are all in the same boat, all receiving chemotherapy.  Because your sessions are usually the same day, same time, you get to know the others who are receiving their chemo treatments on a similar schedule as yours and you begin to bond with them.  It always amazed me how we made almost instantaneous friendships at chemo.  I was blessed that the oncology nurses I had were such kind-hearted people who were so loving towards us.  It made it ‘almost’ fun to hang out there (ok, you know I don’t mean it) but it was the people, the nurses, the doctors who made the chemo easier to handle.  I hope that you are as blessed as I was…

Food:  Because you are there for hours, we were usually given ginger ale (which helps with nausea), water or apple juice and sometimes even ice pops.  I liked to snack on cheez its which aren’t very nutritious, but they were bland and a little crunchy and for some reason, they helped me with nausea.  See what your doctor and nurses recommend.  Stay hydrated.  Eat small meals which help with nausea as well.

ACT Chemo HAIR LOSS:  2-3 weeks after your first chemo, you will lose your hair.  All of your hair.  The hair on your head, your eyelashes, eyebrows, the hair in your nose, the hair on your legs (yup, no shaving them for awhile!), the hair under your arms and (Rated Mature:  you will even have that popular Brazilian waxed look without ever having to endure the pain of being waxed!)  So you will need to deal with your hair coming out which for some women in particular, is a hard piece of the chemo trauma.  For me, I knew I had to do something when my hair began coming out in clumps in my hands when I was in the shower.  It was mind-blowing for me.  It struck me in my gut in the most awful way.  So my husband and I took matters into our own hands. You can read about it here.

American Cancer Society has a great program called Look Good Feel Better click here to find more info  which is a great way to learn some make up tips on how to draw on eyebrows etc and make yourself feel prettier with new makeup all for free!  While you are there, you can even bond with other women who are fighting cancer as well.  There are also opportunities to be fitted with a great-looking wig for free with your local American Cancer Society.  You can also purchase turbans and scarves to keep your head warm in the cold winter months because quite frankly, a bald head gets chilly at night!  And if you should need breast forms and even stick on nipples while you are awaiting reconstruction, you can get those there as well.  ACS is a great resource.  You can even ask to talk with a Reach to Recovery volunteer who will be hand-picked for you.  This woman understands what you are dealing with because she’s been there already.  ACS will try to match you with someone who is most like you ~ age, marital status, children, stage of cancer, type of surgeries, chemo, radiation etc.  For years I was a Reach to Recovery Volunteer.  It makes a difference to know someone understands what you are going through without having to explain.

I hope this list helps you as you are dealing with cancer, chemotherapy and all the rest of the mess that encompasses fighting the disease.  You can do this ~ believe me, I am/was the wimpiest girl ever who endured breast cancer!  I still feel faint at the sight of any needle, but I know that…

You can do this.  I will help you.  I believe in you.

So reach out,  take hold of my hand.  You’ve got a friend in me. 

I’m always here for you with a smile and with understanding.

Shine On!

xo

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Daily Prompt ~ Changes!

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Change is beautifully inevitable

Daily Prompt: Ch-Ch-Ch-Ch-Changes

You need to make a major change in your life. Do you make it all at once,

cold turkey style, or incrementally?

For me, changes have never been subtle in my life.  They’ve arrived cold turkey style and left me scrambling to start swimming in order to not drown under the tsunami of change.  Many of the changes took me a long time to come to terms with as some of them were life altering as many changes can be.  Take for instance being diagnosed with an illness such as cancer ~ or being told of the death of a loved one.  Those changes are life altering in and of themselves and they are changes which do not allow for a u-turn in the road of life.  You just have to keep swimming with the tide afterwards.

So I have turned to the cold turkey style of change as my comfort zone in life even though it may take me baby steps in time to allow for the adjustment that the change brings so in that case, I guess my answer is both incrementally and cold turkey!  The change itself, is cold turkey style, but the adjustment which occurs after it, is incremental.  Does that make sense?

For example, when I had my double mastectomy due to breast cancer, even though I was reconstructed in the OR so that I wouldn’t awaken without some type of mound on my chest, the change was most definitely cold turkey style.  There is nothing like falling asleep with my own soft breasts only to awaken with hard, unmoving and cold lumps called tissue expanders under the skin where previously there was warmth.  It took me a long time to be able to change my thoughts, my feelings about myself and find a new normal in accepting my new body, life and scars.  And I won’t say it is easy because it’s not, but I will say it is do-able and this gal who I am now, has a much richer life than before she was diagnosed in 2001.

Even when I was losing my hair due to the ACT chemotherapy that I was taking, I opted to cut off my own hair cold turkey and then incrementally go bald!  Once my hair began coming out in clumps in the shower which is an emotional roller coaster ride even though I knew it was going to happen, I decided to take control over my life and in turn, over the breast cancer that riddled my body.  With a bottle of champagne in one hand and my hair festooned with pink ribbon pony tails, my husband and I celebrated my taking control over my cancer.  Celebratory swigs bonded us as I carefully cut off the pony tails to my scalp, holding the clumps of hair by the pink ribbons.  I remember with the first cut that I couldn’t’ stop giggling because what woman in her right mind takes a pair of scissors to her head and chops off a clump of her hair?  I mean really?  But I did it and it was freeing!  Oh so freeing!

I took off about 10 pony tails (which I still have 2 of my original hair) and looked into the mirror.  All was fun and joyous until I realized that I had big clumps of missing hair on my head.  My gentle and sweet husband to whom I am still so grateful to be married, kissed and held me and then proceeded to cut my hair into a really short pixie style a la Mia Farrow.  (Thank goodness he wasn’t drinking as much champagne as I was that day!)

When he was finished, we looked into the bathroom mirror together and he held me ~ cradling me with his love ~ and he told me that ‘this too shall pass’ for which I believed him.

The next morning, my pillow looked as if a cat had slept on it as it was covered with my pixie short hairs which broke my heart.  So that night, my husband buzzed my head so that I wouldn’t have to awaken with the sadness of looking at my pillow and it was better for me.  Done ~ cold turkey ~ and I felt as though I could move on with my wig, my scarves and my hats.

I have walked through hell and have kept walking for which I am so grateful and I believe that’s why I write my blog ~ because I want to inspire and be inspired by all of you.  For you see, change is inevitable in our lives, so we have to keep evolving, keep flowing with our lives and keep taking baby steps forward.  We can change our course of direction at any time, but we can’t go backwards.  We can only stand still when we need to rest and then begin again.

What makes the changes easier is when we allow ourselves to connect with others on this lifetime journey.  Taking hold of a hand which is offered to you eases the transition of change.  It’s in those moments when we realize that we are all connected here and that change can be beautiful.  Keep smiling!

Shine On!

xo

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